I'm back! After a long sabbatical of not posting, I've returned. I've returned to tell you that which I feel I must before we can move on, or more accurately before I can move on. Because I've been plagued by these feelings of self-doubt and unhappiness (with myself) and inadequacy. I don't think I've ever felt like inspiration people tell me that I am, and I will tell you why. But first I must explain why I haven't posted. It's because I've been afraid. I'm ashamed of what I'm going to tell you, and I'm afraid that you'll think less of me for it. But if I don't tell you, it will continue to plague me. So at last I write.
Starting two years ago, I became someone that I later no longer recognized as myself. I hid this self from everyone outside of my household. When I would leave my house, I would gather my faculties and not act the way I would act at home. I don't know why. Scratch that; I do know why. Because I was so angry. So angry at the world, angry at the people who surrounded me, angry at God, angry at my situation. And the only way I could deal with this insufferable anger was to become someone else, and that someone else lashed out.
I'm not trying to diminish what I did by saying that I became someone else. I could have controlled things I said, but I didn't. And while everyone who knows me knows I don't exactly have the best filter, they also know I am not mean, particularly for the satisfaction of being mean. That's not who I've ever been before, but it's who I was at home for too long.
Things have been much better. I am far past the anger stage in the grieving process now. But that doesn't excuse the things I said then, at least I don't think so.
I can't tell you any specific things that I said, only that I was often cruel, frequently unkind, very often disparaging, and more. And all of this to the people who were trying to help me. My nurses, my family. Though they have since met the "real me," the one who doesn't say things like that, or even think them, and they have told me that they love me and they stay here for me, it was not so in the beginning. They stayed for my mother, because I was such a tyrant.
As far as I was concerned, nobody could do anything right, because nobody could do anything the way I used to. And so I let my anger loose upon them, and it was not a pretty sight. Every nurse steadfastly took when I dished out until they couldn't take it anymore, and at some point they lashed out in return, and with good reason. Since I had none. At the time I thought their "ineptitude" was awful, but none of my nurses are inept. They are all far from that, I was just too angry to see it at the time.
Personalities ruffled me, actions pissed me off, and no one could do much to please me. I didn't like being manhandled, which I am still today-- the only difference is that I have come to accept it. I didn't like that everyone did things differently, so I didn't know what to expect, though I have since come to accept that as well. It just took a long time. A long time for me to stop being so angry, and me to stop being so mean to the people who were trying to help me. (Don't misunderstand: for those who know me, don't think that I have gotten over my periodic temper flares...as I said, I have become ME again!)
I don't really know what else to say. Perhaps I will just leave you to digest this on your own time and in your own way. It has helped me immensely to get this out, but I hope you can be understanding. That time was probably the biggest trial I will ever experience in my life, other than smaller everyday trials. Trying to get through that anger was nearly impossible. But I'm through it now, and that other self is dead. I hope you can read this and see the real me through the angry me. I was angry at the world for letting this happen, and the same with God (or so I thought at the time.), I was angry with people because they weren't perfect, which is terribly stupid. I was angry that I was completely incapacitated, but mostly I was angry at myself for not wearing a seatbelt. But I have managed, somehow, to get past all this and am the person I used to be.
This blog may not be inspirational, but it comes from my heart and I hope that is enough. Until next time. And so we go.
No one can imagine what you have gone through and what you will go through over time. One thing you learn as you go is that control is an illusion. We (you, me, everyone) cannot control what happens around us nor what others do and say. We can, however, accept the changes thrown at us and manage our reactions. Kudos on your emotional growth and I believe more peace will come your way.
ReplyDelete. . . we love you anyway you come at us!
Only you know what you r going through. Your parents love you uncondionally. I believe strong compassionate Nurses is a calling and the strong will endure whatever comes their way. Great blog. Even though I don't keep in contact, you and your family are always in my thoughts and prayers.
DeleteEveryone does that. Every single person. With a major change in life comes a huge personality change too. When my dad got sick, I changed too. And that hate and anger comes right along with it. You can't trust anyone and you can't count on anything you hope for, because suddenly you can't count on yourself. And that pisses each and every person who goes through it off.
ReplyDeleteDon't be embarrassed by your actions, as they were basic human nature. But don't hold back either. The hardest thing for me was to be open about it.
"I'm so frustrated and pissed that I can't just do x" or "it really drives me crazy that so and so never does y" and so on. If you can work your way through it, it begins to fade.
We think you're remarkable because you're dealing with crap we couldn't imagine. But put in your shoes, I guarantee you I'd be a tyrant too. ❤️
-Cori
I've often thought- "I don't know how she does it. If I would her, I'd be either inconsolable or so furious no one would put up with me." Sometimes we aren't perfect. And that's what grace is all about. It's good to know that everyone is still human, and that you are loved. It's great to hear the whole story- not just pretty parts. Keep writing! I love reading them!!
ReplyDeleteI am sure the anger will come and go but glad that you are posting again. I like to hear from you. Hey, I am sure that my husband would agree that I can get angry tooooo for oh so little things :(
ReplyDeleteAlexa, first if God understands your anger and forgives you who are we not to? Before I go on I want to thank you for being brave and honest. I do not think any less of you for being open and honest, as a matter of fact I think even more highly of you. You've just shared with us your epiphany and it is extremely inspirational more than you realize. Reading your experience has me reflecting on myself. That's when you know you've touched the hearts of another. Speak your heart. We are listening. God is hearing. ❤
ReplyDeleteIt is almost the 25th anniversary of the boogie board accident that changed my life. It's still unbelievable to me that something that stupid could trigger all these autoimmune diseases that have altered me in so many ways. I spent two years in a darkened room, in so much pain, never leaving home except to go to the next doctor. I rode that emotional roller coaster - the blame - the denial - the acid tongue only silenced by tears. Bad memories. You have made a HUGE leap ... and your honesty is a testament to your strength. Now, Alexa, don't ever completely tame your temper, because it is a facet of your personality that makes you you. Semper Gumby, my friend.
ReplyDeletei admire your guts. I have had my disability all my days, but got pushed by thermometer wielding experts. I'd like to be friends.
ReplyDelete